Pulmonary Sequestration.
That was the diagnosis after the CT scan. Basically, it means a little chunk of Delaney's lung decided to try and set up shop on its own; it's happy to get its own blood supply but it really doesn't feel the need to contribute by oxygenating any blood.
So yesterday afternoon we came to Omaha; Delaney came in her very own ambulance, and was accompanied by one of our favorite nurses. After the surgeons took a look at her (several hours later), they decided it would be best to get her off the ventilator and see how she breathes and feeds over the next three days. If she doesn't do well, they'll operate now-ish. If she does do well, they'll hold off operating for six months. The reasoning is that'll give her time to grow, and it'll give the surgeons more room to work.
So that's fairly good news, in that we know more about what's going on, and we're starting to get a timeline in place. Now for the excellent news...before we left Lincoln, Jess was able to hold Delaney for the very first time. It was a big moment, and probably would have been too much for the Mrs. Flubbles in the audience.
The second bit of excellent news I already touched on...the ventilator came out! Delaney looks different (and happier) without that thing taped to her face. She tried really hard to cry, but she just didn't have her voice yet. She did sort of quack, though. We heard a little bit of her voice this morning, so she's progressing.
The third bit of excellent news is that after the ventilator was removed, I got to hold her. Yay me!! Very cool.
Mom and Dad McMullen arrived late last night and got to visit Delaney this morning. Dad's pretty sure Delaney flipped him off.
Right now we're just in waiting mode...waiting to see how she does without the ventilator (so far she's kicking tail). That little girl's stronger than Chuck Norris and William Adama combined.
Tuesday, December 04, 2007
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6 comments:
So glad to see her in your arms! We will continue to pray that she gets stronger and can figure out how to breathe and eat at the same time! Try to get some REST as you are waiting for the next three days.
Love,
Brian, Angie, Ian, & Erin
What a gorgeous little girl! And no ventilator to have to look past to see her Mommy and Daddy! We're sooo excited about all the great news and especially that each of you got some cuddle time with Miss Delaney! Can't wait to hear all the great news to come - she's a trooper! Hope you can feel our hugs from Lincoln to Omaha!
Love,
Deepa, Drew and Maya-boo too!
I echo what Deepa wrote - Delaney is an amazing girl. Hugs and love to her and to her mom and dad - you are a beautiful family.
I am so happy for you! She is really an amazing girl. It is fabulous to see both of you holding her.
-Lisa
Can't wait to hear Delaney quack and give Grampa Terry the finger. Hang in there.
Myke
Oh my goodness! I'm so thankful you were able to hold Delaney!!
Jess
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